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Sensory Processing Disorder Foundation's website on Oprah.com

March 24, 2011 by Marla Roth-Fisch

First and foremost, a very heartfelt thank you goes out to all of you who responded to our call to action with our Oprah letter writing campaign. Over 1,200 comments were posted in reference to the mention of sensory integration on the Oprah show that aired on February 18, 2011.
 
The child on this show, Zach, had violent rages and at the age of seven raised a knife to his mother. He was diagnosed with four disorders, one of them being Sensory Processing Disorder (SPD). However, the only disorder that Oprah mentioned on the show was SPD, which may have lead people to believe that SPD causes violent rages.
 
Our hope in starting this letter writing campaign was to educate others and relay the correct information about SPD. With your comments and shared personal experiences your sensational voices were heard! Oprah.com has listed the Sensory Processing Disorder Foundation along with a link to our website as a “Related Resource” in reference to Zach’s story.
 
This exposure is monumental to our mission of education and advocacy for children with SPD and their families. Over 70 million people per month view Oprah’s website!
 
It certainly would be great for Oprah to do a show about Sensory Processing Disorder and we are not giving up on that hope. This has caused quite a media stir in a favorable way for the awareness of SPD. We know that many of you contacted your local media. Should you receive a response and have any questions about media interviews, or if you would like them to interview someone at the SPD Foundation, please contact us.
 
You can view a recap of the show here. Directly under the story is a section called “Related Resources.” The Sensory Processing Disorder Foundation link is at the bottom of this list.
 
 Thank you for believing that YOU could make a difference. You have!
 
 
 
 
Lucy Jane Miller, Ph.D., OTR
Founder and Executive Director
 
 
 
 
5655 S Yosemite Street Suite 305 | Greenwood Village, CO 80111 US | (303) 794-1182 
 
 
 
 
 

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MotherCub Show with Dr. Lucy Jane Miller and Susan Lynn Perry

March 11, 2011 by Marla Roth-Fisch

BY:  Susan Lynn Perry - host of the MotherCub show on World Talk Radio live every Wednesday! 

Autism is such a complex disorder, often affecting several different systems within the child’s body.  When dealing with something that complex and often convoluted, one must look at solutions from many different angles, both internal and external.  In this episode of The Mother Cub Show, host Susan Lynn Perry will interview return guest and biomedical expert, Dr. Kurt Woeller, to discuss one of the newer therapies showing promise for our children with autism, especially in the areas of language and socialization. 

The second half of the show will focus on external stimuli and sensory processing disorders with our featured guest Dr. Lucy Jane Miller. Her award-winning book, Sensational Kids, is our autism book pick of the week, and is a wonderful introduction to how a child’s external environment can have a huge impact on their internal processing. 

Go to WorldTalk Radio on Wednesday, February 23rd, to tune in to this informative show: http://www.worldtalkradio.com/worldtalkradio/vepisode.aspx?aid=52116  The Mother Cub Show, All About Autism broadcasts live every Wednesday at 8am Pacific/ 10am Central/ 11am Eastern, and all episodes are available the following day for mP3 and iTunes download.

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Oprah Mentions Sensory Integration

February 23, 2011 by Marla Roth-Fisch

 

Dear Friends,
 
On Friday February 18th, The Oprah Winfrey Show had an “exclusive” story titled “The 7-Year-Old Who Tried to Kill his Mother.” A frightening, yet true story of young Zach and his mother Laurie.    
 
Zach has a variety of mental health disorders. The first disorder mentioned by Oprah was “sensory integration disorder” as the initial diagnosis for Zach.  The majority of the show focused on the tough challenges of mental illness and the family’s journey. The website, www.savingzach.org states that Zach is enrolled in a residential therapeutic school in New Hampshire that specializes in alternative approaches to helping these children.
 
If you wish to link to the show go to:
 
Neither Sensory Integration Disorder (also called Sensory Processing Disorder) by some people, but not in the Oprah show was not explained in depth, nor was Zach’s mental health diagnoses, leaving the impression that children with a diagnosis of SPD, may be inclined to rage attacks that could lead to attempts to kill others. We have received a plethora of letters from parents and others who are frustrated and puzzled by the Oprah show. 
 
However, we see this as a great opportunity to bring Sensory Processing Disorder / Sensory Integration Dysfunction to the attention of Oprah and her team.  
 
Quote from the show: 
 
“Sensory integration disorder was Zach’s first diagnosis and that has to do with how Zach perceived his world. So he was incredibly sensitive to everything. He would do things like throw himself on the ground, thrash his body, where a normal kid, it would hurt, and he would get pleasure. He would laugh. South bothered him. Light, clothing, that sort of thing and everything was accentuated 10 – 15 times of what a normal person would experience. That’s what sensory is.”
 
 
The SPD Foundation has posted a response online on their website and their Facebook cause page. The Foundation is rallying a grassroots letter writing campaign as well. The goal is to get 10,000 letters to Oprah by next Friday, March 4.
 
YOU CAN HELP!!
 
 
To send your own letter to Oprah’s site, here is what you need to do:
 
1.     Register on Oprah’s web site so that you can leave a public comment:  https://myown.oprah.com/register.html 
 
2.     Base your story around a fact or facts (provided at SPD Foundation site: go to Oprah@SPDFoundation.net for facts you can include in your letter) and keep your response positive.  Our goal is to get 10,000 letters overflowing their virtual mail boxes.
3.     Send the Foundation a copy to so we can tally the number of letters going in. Options on  www.SPDFoundation.net/OprahResponse  
 
4.      Post your letter in the Comments Section on Zach’s story at Oprah’s website.
Go to:   http://www.oprah.com/oprahshow/Children-Dealing-with-Violent-Rage; Scroll down to the bottom of your browser window
Insert in Comments Section.
 
Would love your support and if you can, please post on your site so that many others can participate in this writing campaign. 
 
With Gratitude for all you do!
 
Carrie Fannin
International Coordinator
SPD Parent Connections/SPD Foundation
 
Marla Roth-Fisch
VP board of directors SPD Foundation
digital media marketing strategist, Future Horizons, Inc.
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Congratulations TEMPLE GRANDIN with seven Emmy's!

September 1, 2010 by Marla Roth-Fisch

For lots more information about Temple Grandin, please go to her site;  http://www.templegrandin.com/

 

Parents do know best, Parents Magazine that is, May Issue endorses Sensitive Sam!

May 4, 2010 by Marla Roth-Fisch

Parents Magazine has listed Sensitive Sam first under their "Healthy Reads" section, page 36. 

Pick up your copy of Sensitive Sam, and see why Parents are saying "If your child has a medical condition, try reading a book about it.  He'll feel better knowing that some cool characters share his same feelings." 

 

 

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